The girls came back from Sacramento Thursday, but Fiona became full power sick with a snotty, bubbly nose in addition to her horrible cough so she was quickly moved to my mom's house until she recovers. I took her out for a date the other day and was giving her options of places to eat, but she only wanted to eat all together as a family at our table at home :(
Asha, on the other hand, has been enjoying being the only child again and is getting really good at beating us at the Monopoly card game :)
Now for the latest news. On the bright side, Ian's biopsy showed 99% donor so we are making good progress. The rough news is that the research paper Ian's doctor is basing his current treatment on used 16 rounds of chemo as the basis of their trial. This means possibly 15 more rounds to go, each about a month long. Almost a year and a half of chemo, with all the quarantine and vulnerability and toxic laundry and daily commutes to San Francisco that go with it. Ian laughed, I cried.
We will meet with Ian's doctor on Tuesday and see what his plan is. Please pray wisdom for his doctor as he makes this decision. A year and a half of chemo feels daunting, but if that's what is required to banish the leukemia it is totally worth it.
This news has caused us to re-think how to approach this next season. Should we move to San Francisco, walking distance to UCSF? Should we look for a place with two separate living spaces so we can quarantine a sick kiddo inside the house instead of moving them to another home? Maybe take a mini road trip/vacation/camping trip between rounds of chemo? We will have about a week break between each, and it would be nice to have something fun to look forward to if Ian's strength holds. Please pray for us as we strategize how to make this next season sustainable as a family.
Also, please pray for my energy level as I've been highly fatigued the past few weeks no matter how much sleep I get. I have so much responsibility right now and really need extra energy to keep up with it all.
Thank you!
Hi, honey, I feel sad that the chemo might be extended that long, but yes, if it can mean a long life, in the long run, worth it. I think a lot of your exhaustion is from the commuting, so if, in fact 15 months of chemo in SF are in store, might be good to sublet the apt. and get a place near the hospital, just to make it easier on you. I love you and will keep praying for that full recovery of health and family life.
ReplyDeleteMay blessings be showered upon this strong and loving family!...Love, Sumati
Dearest loved ones,
ReplyDeleteI am praying supernatural energy for you Christy. I am asking Jesus to bless you with all the strength you need right now. My hope is that you get the energy you need and you'll be like wow, where did that come from...oh yeah...Jesus. Lord God in your infinite wisdom, please bless Ian's doctors to know the best path for his restored health. If it's a year and a half of chemo then i ask that you grant Ian the mental, physical and spiritual strength to endure all that you have for him in this next season of life. Of life, brother, of life. I pray special blessings over Asha and Fiona. May they continue to grow and thrive through it all. All this i pray, in Jesus' name.
Love you guys. XOXO
Following you from Asheville, a friend of Chrys Goodman's. I will be praying for all of things you mentioned. It sounds as if you have great instincts about things and what may be necessary and required to keep your family whole and healthy. Your comment about your daughter reminded me of a lunch date I had with my husband 16 years ago when my father was dying from leukemia. It was a lovely restaurant, but I could only cry into my salad. Sometimes that's just where we are at. : / , but it is some consolation to share the tears and raw feelings with those we love. Praying for your family. <3
ReplyDeleteWe are praying for you as you hit this next stage, and the possible long haul. May God give you grace and rest, and peace.
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