Sunday, January 24, 2016

Update

Updates are hard to write these days. It's continued to be a long, rough road. Constant high fevers persist, regardless of how often or high a dose of Tylenol Ian takes. His stomach is tender and nauseous, though the latest CT scan didn't show the typhlitis getting any worse. These fevers are still a miserable mystery.  


We got another low blow last night with news that Ian was diagnosed with a recurrence of cdiff, his absolute arch enemy in the hospital. When you're hiding in a fevered cave under a pile of blankets, the last thing you want is to have to run to the toilet night and day. Cdiff and constant high fevers are a miserable combination. He has been able to kick cdiff within 36 hours in the past, so we're praying that in spite of zero immune system the big gun antibiotics will be sufficient. If his severe fevers subside after cdiff is under control, then part of the mystery of these fevers will be solved. 

On a brighter note, Ian's best friend has traveled all the way from Thailand to be by his side. Chinua arrived last Sunday and has been here pretty much day and night besides a few days of quarantine to make sure he didn't catch any bugs on the plane. While I'm back and forth spending time with the girls, it's been such a blessing to know Chinua is here. 

Fiona turned 4 on Wednesday and we celebrated with our beloved friends in Sacramento. Ian joined in via FaceTime for the singing, tea party, ice cream and cupcakes. It was bittersweet. I'm thankful for modern technology so he could "be" there with us, but it was also painful. I could see it in his eyes. He wants so much to be there, not just for this birthday but for many more to come...



Oh how it has been a swirl of grief and grace around here. High highs and low lows and everything in between. In Ian's perky moments he has us all rolling in belly aching laughter, but constant fevers lately have deflated him significantly. These days are more full of heavy sighs and reminders to take it one day at a time. 

Thank you for your prayers as we continue to run this marathon. 


8 comments:

  1. Thank you for keeping us informed and my prayers will continue. Much love to you sumati.....

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  2. Thank you for keeping us informed and my prayers will continue. Much love to you sumati.....

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  3. We love you all and are praying for you. LIttle Pearl remembers you when we pray at dinner time.

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  4. So much love to you guys!!! I cried reading this. And I smiled and laughed. Ian is still Ian. And love it still good love. And the pain is great. (And, I wish we didn't have a perpetual winter colds here. I want so much to bring some tangible goodness to you. But, still, all I have is love and prayers!)

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  5. Tears of joy come to my eyes just thinking of Ian's sense of humor and all the crazy, belly-aching, tears rolling down our cheek laughter shared in that rat-infested house on 7th Ave :) Love you all so much. Praying for you daily at all my thoughts of you (which are often). Lots of others in our church here in Eugene praying for you as well. All my love <3 Auntie Alison

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  6. My thoughts and prayers are with you all. You are remarkable people, and I trust with you that every tear is felt in heaven as we wait for healing.--Matt's dad-Jim Mazerik

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  7. love love love, grace and care. Let me know if there is anything practical you need from us. yes.

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